Thursday, September 02, 2010

So much data privacy - so much wasted value - I opted out and put my genome on the web here

Time and time again my research has been slowed down by difficulties accessing research data. Some groups are determined to make it more and more difficult to access data for research. Data mining - I don't care as long as there is no malicious intent. Congratulations to the USA government for introducing the non discrimination for genetic data act. This means that US citizens need not worry about higher premiums on the basis of their genetic code. In Australia where we have free universal health care, and private medicine if you want a premium convenient service, we should have no serious concerns about health insurance discrimination.
In the meantime, I am sharing my genetic code profile. This was quite an expensive effort but the number of disease related information items increases by about 6 per year. Over the next 20 years I expect to see 120 diseases and risks laid out for me in the report.
You can look at my genetic report here:
Have fun!

1 comment:

mags said...
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